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March 2018 - C.Diff Say What?



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C.Diff...SAY WHAT?

Each setback I face always yields more clarity and perspective.  I am learning and growing as a person each and every day. I was just diagnosed with C.Diff - which is a bacterial infection in your colon. It feels as glorious as it sounds...NOT! C.Diff can occur after prolonged antibiotic use or it can be contracted from someone who has it. Kind of ironic that I was on anti-tubercular antibiotics for 9 months and never got C.Diff. Also ironic that I most definitely caught it from a clinic appointment at the hospital... THE SAME PLACE THAT I LIKELY CAUGHT TUBERCULOSIS. God the irony kills me! But anyway, s uch a horrible infection with unrelenting symptoms showed me the true importance of advocating for your health ALWAYS.   My GI issues are a large part of my POTS and my daily life - but about 3 weeks ago I started to feel really sick with new symptoms. Right away these symptoms didn’t sit well with me - this was NOT my normal. I had just finished a round of follow-up appointm
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One Patient's Perspective

I had the honor of giving a talk at the UCI Summer PreMed program that I attended last summer.  Check out my speech! One Patient’s Perspective: My Journey Through the Ups and Downs of Chronic Illness and What I’ve Learned Along The Way When I say the words “chronic illness” what are some things that come to your mind?  What you probably didn’t picture is someone like me.  At first glance, I don’t look sick.  Actually, even after having a conversation with me, you probably still wouldn’t conclude that I am chronically ill. I do a very good job at hiding my illness from the world.  And maybe that is one of the reasons why society often doesn’t know how to treat those of us living with a chronic illness, because of how hard we work to hide our suffering.   There is a lot of stigma surrounding chronic and invisible illnesses, but that is just because we, the patients, often have no voice. If you couldn't already tell, I am not a typical 17 year old.  I have always be
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Postural Orthostatic Tachycardia Syndrome

Finally, the answer that we had all been waiting for (well mostly me, since I was suffering for so long)! This is the (long) story of how I FOUND my diagnosis. To give the run down on the WHOLE thing would take up too much of your time.  The thing that I want to stress here is that, I am a complicated patient!  Simply put, that is why this diagnosis was hard to come by.  What makes me complicated?  Not the asthma.  Not the weird Gastroparesis-like symptoms.  The frickin Latent TB, that's what!  When you have spent your whole year, sick as a dog on Super Strength antibiotics for TB, you are not looked at as a regular patient.  When on LTBI treatment everything you describe is noted as a "side effect".  So when my list of "side effects" covered pretty much everything under the sun, it started to cause concern.  Concern to mainly me, because "Hello?"  I am the one sick day in and day out.  My concerning list of infinite "side effects" sparke
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